To list down the names of celebrities including entertainers, musicians, politicians, TV personalities, sports figures, etc. My son will be 16 next month. The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. Thanks. My question here is what is the damage I can cause to my heart, mechanical valve, if I keep my heart rate at hi intensity levels? She was originally under the impression she felt the way she did simply because she was exhausted. Less 100mmhg. As I have aged I have upped the reps to 15 or more and two or three sets max, sometimes doing a set or two of 5 reps with heavier weights. Thus far shes had only minor bruising (shes 6ft and has a solid build). TAVR is not the 'beginning of the end' for aortic stenosis open heart FAMILIAR FACES WITH CHD'S - Helping Hearts I think hes amazed by what I have described for my workouts of 65+ mile rides several times a week. You might keep in mind that trans-catheter aortic valve replacement (TAVR) can be used to re-replace the aortic valve. His cardiologist told him to focus on basketball. However, randomized, controlled trials have excluded bicuspid aortic valve (BAV), which is the most frequent congenital heart disease occurring in 1% to 2% of the total population and representing at least 25% of patients 80 years of age or older referred for aortic valve replacement. I have 5 children, so I dont want to drop dead and leave my poor wife with them all to look after on her own. My son is a very active and healthy 14 year old. Its awesome to see you are diligent at responding to people also. looking forward for healthy life without surgery any possibilities??? I cant distinguish if its muscle pain or somewhere inside chest, its not sharp or dull, somewhere in between. So I saw an incredible surgeon and we are going for the Ross Procedure in Feb. Now that we know the type of surgery does this improve my chances or one day returning the CrossFit addicted life I miss? We have contacted the Cleveland Clinic to learn more and will report back soon. I was diagnosed with BAV about four years ago now by fluke whilst looking into my high blood pressure (I was only 24 at the time so I underwent a lot of testing due to my age and HBP the conclusion was it is hereditary, with many members of my family with HBP). Some cardiologists tell me that I can run up to 130 beats per minute ; others say theyd prefer I do power walking because pressure always rises while running. Do you think running 40 minutes five times a week at that level of beats can increase the aorta rate of growth ? But thats just anecdote. Aortic Valve: Function, Location & Anatomy - Cleveland Clinic Average STS score was 1.7%. Replacement? Ordinarily, race walking is considered to be in the same category of activity as long-distance running. His exercise stress test on 8/5/16 was fine. First, a disclaimer.My practice is devoted to adult patients. mod-severe regurgitation Benefits: no blood thinning (with attendant risks) needed. Women are 50 percent more likely to be given a wrong diagnosis after a heart attack and are at a greater risk of dying within a year of a heart attack than men. Use of this site constitutes acceptance of our User Agreement and Privacy Policy and Cookie Statement and Your California Privacy Rights. I certainly know runners, cyclists, and triathletes in that circumstance who are active and doing well. Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. No one loves life more than I do, read the statement. The aortic valve allows oxygen-rich blood to flow from the heart to the aorta. Im hoping you can help with some guidance. The Institute is a unique collaboration of cardiothoracic and vascular surgeons, cardiologists, pulmonologists and basic scientists all working together without the boundaries of departments or specialties. transcatheter aortic valve replacement (TAVR), Mick Jagger's Heart Valve Surgery: Top 5 Facts. Some people with bicuspid aortic valve will have symptoms in early childhood. This is an unfortunate situation for the athlete patient because the consensus guidelines do not yet recommend operation, yet advise against strenuous sports activities. Search for heart hospitals that specialize in heart valve treatment. Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. First, youre not alone! The issue of how much (& what types of) exercise after surgery is difficult because we dont have good studies (& evidence) upon which to base recommendations. Many of us are not familiar with the many types and facets of the martial arts. I was running 9 to 10 minute miles. Hannah Yona Fraint, M.D. In March 2018 he underwent emergency surgery to have this replacement valve replaced. Biscuspid Aortic Valve with trivial AR Still it puzzles me that for you as for me it seems to degrade more after the diagnosis for a condition we have since birth. Interestingly, bicuspid valves are one of the most common forms of heart valve disease. I have almost everyday all day shortness of breath which follows with chest pain and discomfort. Aortic enlargement in patients whove had valve replacement for BAV can be a vexing problem. I can tell my story. I currently lift reasonably heavy weights in the 8-12 rep range, including body weight excercises such as pull ups and push ups. Thoughts. After an MRI, Ive been diagnosed with BAV and mild aortic coarctation. I am now down to seeing my doctors every 3 years or so and have been doing very well. There are four valves of the heart, which are divided into two categories: Atrioventricular valves: The tricuspid valve and mitral (bicuspid) valve. I just need to know if these sports are a possibility (im pretty sure football is a no given its contact nature). The ST junction and ascending aorta are mildly dilated max 35mm. In 2017, there were 3,046 deaths due to rheumatic valvular heart disease and 24,811 deaths due to non-rheumatic valvular heart disease in the United States. I was shocked. At this time, it is not known whether Arnold received the new valve using a surgical aortic valve replacement (SAVR) or atranscatheter aortic valve replacement (TAVR). 2. Cardiac outcomes in a contemporary population of adults with bicuspid aortic valve have not been systematically determined.Objective To determine the frequency and predictors of cardiac outcomes in a. I know that there can be complication with Dacron graft or even aorta aneurysm building up but Ill stay on positive side since I have no tissue disorder and its highly unlikely that with properly working aortic valve I would develop another one in that short period of time. Etc? The American College of Cardiology (ACC) in conjunction with the American Heart Association (AHA) has issued guidelines for the evaluation, monitoring, and treatment of individuals with BAV: In my opinion, these are useful guidelines for athletes and non-athletes, alike. Do you think the jiu-jitsu (e.g. Both are important in deciding if and when operation is needed. In addition to the European guidelines, there is also an American set of guidelines published in the Proceedings of the 36th Bethesda Conference. Jansen Panettiere Family Reveals Actor's Cause Of Death In practice, the indications for aortic valve replacement for severe aortic stenosis or severe aortic regurgitation are straightforward and uncontroversial. Related posts: Several famous people were reported to have had bicuspid valves: former first Lady Barbara Bush, the comedian Robin Williams, and California Governator Arnold Schwarzenegger. Theres no reason to not be CPR certified.. However, his ascending aorta has been enlarging: 11/27/13 31 mm (echo), 6/10/15 39 mm (echo), 7/8/16 41 mm MRI). Our only tool to keep track of aortic enlargement is repeated measurements with CT or echo. Dear Dr. Creswell, Athletes should have detailed discussion with their doctors about any prudent limitations to exercise after operation and settle on a mutually agreeable plan. Please refer to this article if not: https://academic.oup.com/ejcts/article/50/3/400/2197426. Hi, Fantastic website, there is very little actual information on this on the web. All Rights Reserved. Okay to wait? We dont have a crystal ball, though. Im really wondering at what point should I look into flying back to Thailand or Hong Kong to get re-checked. You already have a cardiologist looking after you. I used to do quite some running 10 years ago (still at amateur level), I was doing lots of 10k and 20k and even I managed a marathon in 3h:26min (but at that time I didnt know about the BAV). I dont have any ayptoms. Hi Dr Creswell, Aortic Stenosis Bicuspid aortic valve (having only two leaflets rather than the normal three) happens in about 1% to 2% of the population and is more common among men. I was concerned about his cough last weekend so I was assessing his lungs with my stethoscope when I heard a very pronounced diastolic murmur at his 3rd ICS. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. And any valve substitute (with valve replacement) is clearly not as efficienteven if the substitute is better than a diseased valve. Seek different pediatric cardiologist/hospital (we have not seen a cardiologist yet)? The video is just 1 min 42 sec long. The average lifespan for a cow valve or pig valve is about 10 to 15 years, according to the Cleveland Clinic. My AVG HR on a daily basis is between 61-64 (that includes a workout where it exceeds 150 at times), I have no intentions of racing this marathon, simply crossing the FINISH line, and my heart rate will not exceed 150 I will walk when/if necessary. Thanks for sharing your experience, Randy. My cardiologist tells me that I need to be monitored yearly and that I should exercise without limitation (for cardio) I have symptoms however that include chest pain and shortness of breath and palpitations. In Jan 2016 My son was seen by the cardiologist and had some changes on his echo and the cardiologist said hey had mild progression of the aortic regurgitation( moderate to severe) with preserved LV function. I am a 36 yo male who was first diagnosed with BAV at the age of 17. Mayo Clinic Q and A: Treatment and management of bicuspid aortic valve Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); He also has minimal leakage at the valve aorta. Aside from the problems with aortic valve stenosis or regurgitation or with enlargement of the aorta, individuals with BAV can also suddenly develop the problem of aortic dissection. I know it can be frustrating when you get conflicting opinions regarding the safety of exercise. . In patients needing valve replacement because of stenosis or regurgitation, the aorta should be repaired or replaced if the aortic diameter exceeds 4.5 cm. Body contact sports may pose some danger to athlete patients who take blood thinners. I am mostly a runner, 4 times a week, with 10 21 km races. I asked my surgeon and also the echocardiographist about my sports performance after full recovery, about 6 months after the surgery. Bicuspid aortic valve (aka BAV) is a form of heart disease in which two of the leaflets of the aortic valve fuse during development in the womb resulting in a two-leaflet (bicuspid) valve instead of the normal three-leaflet (tricuspid) valve. It prevents the blood from flowing back from the aorta into the heart when the pumping chamber relaxes. For example, his spurt in enlargement happens to coincide with his spurt in growth. Sory but I dont speak very vell english. The studies on Irbesartan for Marfans(I dont have Marfans) are showing some positive outcomes; and. So my question: does there appear to be any performance advantage of tissue valves over mechanical or does the fact that Im on the anticoagulant anyway make the mechanical valve sort of a no brainer choice? Seven months ago I had emergency AVR due to a BAV that was severely compromised by endocarditis. Bicuspid aortic disease occurs when a defect is present in the valve that opens and shuts to allow blood flow from the heart through the aorta. I would not want yo distinguish between the various forms of static exercise that you mention. Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. Most patients spend about a week in the hospital after operation and then are able to go home. Ive recently joined the gym to get fit an toned up but I cant get a clear answer from the cardiologist of what weights I cant actually do at the gym. Current guidelines suggest no restrictions on activity for athletes with BAV who have no stenosis/regurgitation and who have a normal sized aorta. I am wondering because I know that weighlifting with bav isnt so good I feel terrible because i lov weightlifting and I have build a body that is so difficult for a 18 years old. Over time, there will be some patients who develop problems with the prosthetic heart valve or enlargement of some portion of the aorta (that hasnt already been replaced) that requires operation. I cant imagine life without CrossFit, but I wont be able to continue will I? How long does it take for the homograft to completely heal? While my surgeon said that I can do whatever normal healthy person would do my cardiologist gave me some restrictions basically not to raise my HR over 120. I take BP medication namely Amlodopine & Ramipril which has lowered my BP. The valve will become healed (scarred) into the surrounding heart tissues with the passage of time. While i appreciate you are not my cardiologist and we`ve never met is there anything generic out there that i can look at to gain an idea. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. 1. I didnt get it.". Hi . View HelpingHeartsCharitys profile on Facebook, View @HelpingHeartsMDs profile on Twitter, View HelpingHeartsCharityMDs profile on Instagram. Advice in this area must be individualized with your doctor(s). What he did say is there are no signs of stenosis, and my heart looks very strong. Typically, the aortic valve has three cusps (tricuspid aortic valve), but some people are born with an aortic valve that has two cusps (bicuspid aortic valve). However, my most recent scan in October revealed all Stenosis and LV thickening had gone completely (Doctor said this was a very positive result perhaps due to excercise and medication). BAV was diagnosed in 196 newborns (prevalence, 0.77%), with a male-female ratio of 2.1:1. To continue to live this amazing life so full of challenges and friends, including so many of you in the audience, I have chosen to replace the valve with a new one. This is ridiculous. That is except for the last two months hes had several illnesses ( influenza, bronchitis, URI). In April of this year (2016), I discovered I had a BAV in the worst manner possible. Thanks! Ever since undergoing open heart surgery in 2010 for her surprise diagnosis of heart disease, Jones has worked as a national ambassador for the American Heart Association to raise awareness. To no surprise, people are worried about me running tomorrow. However, is there any advantage to having them screen in their first decade of life, if they are not showing any symptoms? The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. A CT scan made the diagnosis. Jones' goal with the AHA is to help women "actively put themselves on the track to heart health." I eat relatively well, but sometimes having those pizzas and burgers late at night I had to change that.. Business, Economics, and Finance. For many patients, I recommend no heavy lifting (>10 pounds) for the first month after conventional heart surgery. Im a 57 year old male who had aorta repair and porcine valve surgery 3 years ago. My son is 16 years old and his story is very similar to many I read on your blog. John Fox, NFL coach, suffered from Aortic Valve Disease. No information provided by Baldwin Publishing, Inc. in any article is a substitute for medical advice or treatment for any medical condition. A normal aortic valve looks like the Mercedes logo, a circle broken up by three lines that meet in the middle. No LA, RA, RV, chamber dilation with an efficiency of 69%, I have an appointment with a specilaist next week and am just wanting some, even if vague, answers. I am big for my age . Glad to hear that youre recovering, Zdenko. Could you please give me an insight into what else could be causing these chronic episodes of shortness of breathe, lightheadedness and off-on chest pains. Many thanks again for answering this. Running it is important for me but if it has a problematic effect , I would opt for power walking Since then I completed several 10k races and one half-marathon. Outcomes in Adults With Bicuspid Aortic Valves - JAMA I have also had a stress test, which showed no issues at all. If I ever need surgery to replace my root , I understand that there is an element of complexity for such surgery, but after surgery, is life expectancy for individuals assumed to be shortened at all ? It is unclear however if there are cardio thoracic surgeons who perform minimally evasive repairs yet. Im a 29yo CrossFit addicted man who just found out I have BAV while applying for the defence force here in Australia. Best to mention your participation in the marathon when you have the tests done. "Until then, stay close.. . In addition to being patients, there are many celebrities who, like you, parent a child with CHD as well. Enlarged ascending aorta 42-43 mm Thank you sincerely for your time and information. Celebrities With Heart Disease - Celebrity Heart Health Survivors. I wouldnt be happy just running I want to be the best that I can be at it. His last MRI showed a dilation of 4.4cm at his aorta root but his BAV is fine with very little leakage. Now, five months after surgery Im gradually returning to sport with 5km runs and kettlebell routine, push ups and pull ups (still feeling pressure in breast bone) no heavy lifting. Chris Pratt to Marry into the Kennedy Family. Or its the result of the cumulative effect of the aortic and mitral valve leakage? His doctor did not restrict him, but suggested that it may be time to give up the high-level play due to its high intensity training aspect (based on the The doc states that basketball is a contact sport in her medical books and we would need to consult with another doctor to possibly get approval. Im 32 years old and didnt expect at all that my aorta would dilate. Its conceivable that an echocardiogram a week afterwards could be abnormal simply because of the race. (bicuspid aortic valve), singer Bret Michaels (atrial septal defect), and even 'Survivor' contestant Whitney Duncan (ASD). Log in, September 26, 2013 By Larry Creswell, MD 155 Comments. Can you please shed some light on this is the sport performance supposed to gradually diminish (seems to go to zero for me) before the operation is needed? Great to hear that youre doing cross country running. I get the fact that lifting excessively can cause a spike in blood pressure, but only under certain conditions (i.e. It sort of flutters open and shut. Im a 33 yro female, diagnosed with BAV. Call 911. The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. Substitute valves. Will surgery mean I can do more or less training? Thank you for your expert opinion. I have: Im afraid Ill end up like my Mom. Hi, my name is Hector and I am 34 years old. I continued playing hockey routinely until I was in my late twenties. I have not had any issues since my surgery. Celebrities with Heart Valve Disease | Wonder lifting a max bench of 150 lbs Living fearlessly with bicuspid aortic valve disease Yesterday, for example, I spoke with a 71-year old patient who just had aortic valve replacement surgery due to this . Specifically, Im wondering about inversions like forearm stand, head stand, and hand stand. Unanswered questions include: Can a bioprosthetic valve wear out more quickly than expected? I excercise 2-3 times a week, namely cardio and weight lifting. While I do not work out regularly, my job as a construction worker is somewhat strenuous. He posed next to statues of Thomas Jefferson, Jesse Owens (whose family moved to Cleveland when he was nine, and who later attended The Ohio State University), and Abraham Lincoln. Either way I often think my cardiologist looks at me as if Im nuts and that my current 175 miles a week training should be thought of as beyond expectations post open heart surgery. Thank you so much for your clear explanations. If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. Bicuspid aortic valve (BAV) disease does not usually cause symptoms. This blog helped me a lot in my panic days, it put me at ease when I was worrying to much, just to see and to know your enemy and to realize that you are not alone is great help.